About us
First of all, I want to clarify that I am unfortunately one of the many people suffering from Myalgic Encephalomyelitis (ME). Please note that I have good days and days when I am completely exhausted, which affects the development time of the site or any responses from me.
I am not a healthcare professional and I don’t have any specific medical knowledge about this condition. I regularly inform myself to share important developments and useful resources with you. Therefore, I am not able to take care of sick people, contrary to what has already been asked of me.
Why this website?
Simply to gather all the information (testimonials, contacts, associations, resources…) in one place. During my research, I found many interesting results, but you have to search and click on numerous links before getting the desired answer.
After watching a program broadcast on ARTE (1st video on the “Testimonials” page) that presents testimonials from sick people and highlights the researchers’ struggle to obtain funding, I felt a deep anger. Having the technical skills to create a website, I decided to do so to centralize the information and make it more accessible, while remaining concise and true to my words and feelings.
Let’s be clear: this disease is called Myalgic Encephalomyelitis. It is important to abandon the vague term “Chronic Fatigue Syndrome”, which downplays and maintains confusion. This term does not reflect the reality of those affected at all and contributes to ignorance, even in the medical field — among general practitioners, specialists, and sometimes even neurologists.
I hope that this website will help to better raise awareness about Myalgic Encephalomyelitis on a few pages and help sick people feel a little less alone by providing them with useful resources and contacts.
If you have information that is not referenced on the site, suggestions or other specific requests, you can let me know at: contact@em-sfc.org. I will soon set up a form to facilitate exchanges.