ME/CFS – Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
Voices to help us understand
Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS)
Testimonials
There are a great many testimonials on the Internet. They are all worth watching, but I have only selected a few here so as not to overload this page.
I took the time to watch each of the testimonials below carefully, as well as many others available online. My aim is to make it easier to understand what sick people actually live through — especially for those who are not affected themselves or who have recently been confronted with ME/CFS.
All the videos below are in French or French-dubbed — unfortunately, I am limited by the language barrier.
Orphan diseases, forgotten diseases
Documentaire ARTE consacré à l’encéphalomyélite myalgique et au combat des chercheurs pour obtenir des financements.
Pietro’s journey
Témoignage très intéressant du parcours d’un malade expliquant l’errance médicale avant d’obtenir un diagnostic.
Surviving on low heat — Broadcast 18.12.2019
Plusieurs malades témoignent de l’impact que la maladie a sur leur quotidien.
Nathan — 16-year-old teenager
L’encéphalomyélite myalgique n’épargne personne, mais touche plus particulièrement les femmes.
Videos open on YouTube in a new tab. No video files are hosted on em-sfc.org.