ME/CFS – Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
Associations, resources and research
Links by country and international resources
Useful links
This page lists patient associations, foundations and useful ME/CFS resources by country. The list is not exhaustive — please let us know about other relevant resources.
🌍 Support ME/CFS research
Research on myalgic encephalomyelitis / chronic fatigue syndrome still lacks funding worldwide. You can support dedicated international organisations:
🌐 International resources
Alliances and platforms useful when no dedicated national association exists, or to complement local resources.
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World ME Alliance
Global alliance of ME/CFS organisations.
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#MEAction
International patient network and online support groups.
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European ME Alliance (EMEA)
16 European ME/CFS patient associations.
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MEpedia
Collaborative encyclopedia of ME/CFS science and history.
🇫🇷 France
🇧🇪 Belgium
🇨🇭 Switzerland
🇬🇧 United Kingdom
🇺🇸 United States
🇨🇦 Canada
🇩🇪 Germany
🇪🇸 Spain
🇮🇹 Italy
🇳🇱 Netherlands
🇵🇹 Portugal
🇵🇱 Poland
🇩🇰 Denmark
🇳🇴 Norway
🇸🇪 Sweden
🇫🇮 Finland
🇷🇺 Russia
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Invisible Diseases – registre et dépistage ME/CFS (Russie)
University project: patient registry and screening questionnaires in Russian.
🇺🇦 Ukraine
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Patients of Ukraine (Пацієнти України)
General patient foundation (serious and rare diseases) — not ME/CFS-specific, but useful in Ukraine.
🇹🇷 Turkey
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#MEAction – groupes de soutien internationaux
No dedicated ME/CFS patient association identified in Turkey; international resource recommended.
🇮🇳 India
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Chronic Pain India
Indian chronic pain and illness network — also covers ME/CFS (no dedicated ME association identified).
🇨🇳 China
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World ME Alliance
No dedicated ME/CFS patient association identified in China; international resource recommended.
🇯🇵 Japan
🇰🇷 South Korea
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#MEAction
No formal patient association identified in South Korea; online communities and international resources.
🇸🇦 Arab world / MENA
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World ME Alliance
Few dedicated ME/CFS patient associations identified in the MENA region; international resources as complement.
- The ME Association (ressources en anglais)
🇦🇺 Australia
🇳🇿 New Zealand
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