Who am I?
The address of this website is: https://em-sfc.org.
This site is dedicated to providing information and support about Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS). It is published by “Philippe N.”, who can be contacted at the following address: contact@em-sfc.org.
Comments
Comments
When you leave a comment on the site, the data entered in the form (name, email address, comment content) is collected, as well as your IP address and browser user agent string to help detect unwanted comments.
An anonymized string created from your email address (hash) may be sent to the Gravatar service to check if you are using it. Gravatar’s privacy policy is available here: https://automattic.com/privacy/. After your comment is approved, your profile picture will be publicly visible next to your comment.
Media
Media
If you upload images to the site (for example in forums or testimonials), you are advised to avoid uploading images that contain EXIF data with GPS coordinates. Site visitors can download and extract location data from these images.
Cookies
Cookies
This site uses cookies that are essential for operation (login, security, display preferences) and, where applicable, audience measurement cookies to better understand traffic and improve content.
If you leave a comment, you can choose to save your name, email address, and website in cookies so you do not have to re-enter this information when leaving future comments. These cookies expire after one year.
When you log in to your account, cookies are used to store your login information and your display preferences. A login cookie generally lasts for two days, and a screen preference cookie for one year. If you select “Remember me”, your login will be kept for two weeks. When you log out, the login cookie is removed.
When you edit or publish content, an additional cookie may be stored in your browser. It does not contain any personal data and simply indicates the ID of the content you just edited.
Embedded content
Embedded content from other sites
Pages or posts on this site may include embedded content (for example videos, images, audio players, etc.). Embedded content from other websites behaves in the same way as if the visitor were visiting that other website.
These websites may collect data about you, use cookies, embed third‑party tracking tools, and monitor your interactions with the embedded content, including tracking your interactions if you have an account and are logged in to their site.
User accounts and interactions
User accounts, forums, testimonials, and videoconferences
When you create an account on this site, the information you enter in your profile is stored (for example name, username, email address, and any additional information you choose to provide). This information is used to:
- allow you to log in
- participate in forums and submit testimonials
- organize or participate in videoconferences if these features are enabled
Some profile information (for example your username, photo, or bio) may be visible to other users if you choose to provide it.
Use and sharing of your data
Use and transmission of your personal data
The data you provide is used only for the operation of the site (account management, comments, forums, testimonials, organization of possible videoconferences) and, where applicable, for measuring the site’s audience.
If you request a password reset, your IP address will be included in the reset email.
Your personal data is not sold. It may be processed by technical service providers (hosting provider, analytics tool, anti‑spam service) acting on our behalf.
Data retention
Data retention periods
If you leave a comment, the comment and its metadata are kept indefinitely so that any follow‑up comments can be recognized and approved automatically instead of being held in a moderation queue.
For accounts registered on the site, profile information is kept as long as the account remains active. You can edit or delete this information at any time (except for your username). Site administrators can also view and edit it as part of site administration.
Technical data (logs, analytics cookies, etc.) is retained for limited, reasonable periods in accordance with applicable regulations.
Your rights
The rights you have over your data
If you have an account or have left comments on the site, you can request a file containing the personal data held about you, including any data you have provided. You can also request the deletion of your personal data.
This does not include data that must be kept for administrative, legal, or security purposes.
Where data is sent
Where your data is sent
Visitor comments may be checked through an automated spam detection service.
Depending on the features enabled (analytics, videoconferences, external videos, etc.), certain technical data may be processed by third‑party services, each of which has its own privacy policy.